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[C223]Caring For Elderly Parents
by Vicki Rackner, Vic

Over 30 million Baby Boomers provide countless hours of assistance to elderly parents at no charge. It is estimated that, using average hourly wages, the total amount of this uncompensated care is comparable to the entire Medicare budget. For the estimated 7 million Boomers who provide long distance care, actual out of pocket expenses amount to almost $5,000 per month. For caregivers who have, or are considering leaving the workforce to care for an ailing parent, the costs are even greater - over $650,000 in forfeited salaries, benefits and pensions.

This stark economic reality shows only one dimension of the price caregivers pay for this act of love.

Caregivers pay with losses that extend well beyond their bank accounts. They often forego the activities that bring joy and richness to their lives, like meeting friends for dinner, or going out to the movies or taking family vacations. They pay with their time, the loss of professional opportunities and the erosion of personal relationships that result in isolation.

Sometimes, otherwise healthy loved ones need a short dose of care as they recover from an acute medical episode like a broken leg. Usually loved ones are on a path of steady decline with cascading assistance needs. Some caregivers sacrifice large chunks of their own lives as they help their parents and other family members and friends peacefully make their transitions. Caregivers can pay with their own health and well-being. In fact, we have evidence that some caregivers pay for their acts of care with their very lives.

You can decrease the personal and economic costs of caregiving. This means proactive planning rather than reactive responding. Planning saves money. You know this as you reflect upon your experiences of going to the grocery store with and without a shopping list. Planning also minimizes personal wear and tear and decreases stress. You will feel much better when you know your options and develop back-up plans before you jump into a challenging project.

5 Tips to Decrease the Cost of Caregiving:

1. Begin the conversation today. We have tremendous cultural resistance to the recognition of aging, disability and death. Just as the first few steps uphill are the hardest, so, too, you may meet the greatest resistance simply starting the conversation about their possible need for care. Say today, "Mom and Dad, it would be great if you lived forever, but the discovery for the fountain of youth is nowhere on the horizon. What thoughts and plans do you have about enjoying your golden years?"

2. Create a plan. Talk with your parents about their ideal plan if they are no longer able to care for themselves. Then, start to work toward that proactively. Investigate long-term care insurance. Draw up the appropriate legal documents. Find out who would make medical choices if they were not able to make them on their own, along with some guiding principles for the choices. You can anticipate and limit parental resistance by saying, "Mom and Dad, I just got back from the lawyer's office signing my will and durable medical power of attorney. I've asked Mitch to make my medical choices if I cannot make them myself. Just so you know, if I were in vegetative state, I wouldn't want to be maintained on a machine. You probably already planned ahead too, right?"

3. Use personal and community resources. Make caregiving a family job to which each member contributes. Even children can make grandma's life special with drawings and phone calls. Identify services that make your job as a caregiver easier. If you and your parents live in the same community, check with friends and neighbors and local organizations to learn about services and resources that will make your job easier. You say, "Mom has just moved in with us, and she wants to 'find a card game with the girls.' Do you know of any senior centers that have social events? How about transportation?"

We're a mobile society and millions of caregivers live more than an hour away from their parents. Executive William Gillis learned from his own personal experience how challenging it is to identify community resources from afar. As he was carving the path that ultimately led his on-line portfolio management service, he became the caregiver for his father. Talk about mixed emotions! Professionally, he was introducing a service that let millions manage their investments with one click of a computer mouse. Personally, he was investing untold hours just to find one bit of information to help his dad."

As with so many innovators, he used his personal and professional experience to launch Parent Care (www.parents-care.com), a service that he wished would have made his life as a caregiver-at-a-distance easier.

4. Gather cost-savings tips. This might mean something as simple as ordering generic medication or regularly inquiring about senior discounts. But, most cost savings opportunities aren't as obvious. Mr. Gillis found, for example, that some states will pay for phones for hearing, visually or mobility limited seniors or fund home safety improvements. He said, "We've invested heavily to locate time and money saving resources that most would have difficulty finding. I made it a personal mission to help other caregivers avoid some of the costs and frustration I encountered." You don't have to re-invent the wheel. Tap into the resources others have collected.

5. Take care of yourself. You will be able to provide the best care as a caregiver when you're at your best. Get good nutrition, enough sleep and regular exercise. Manage your stress and do a little something every day to nurture your soul. Understand that you are at increased risk for anxiety, depression, and weakening your immune system. Talk to your doctor if you see worrisome signs such as problems sleeping, changes in appetite or loss of interest in activities you enjoy.

Despite the costs, most caregivers say that they received much more than they gave. Most say they would do it again, and many do.

Sometimes the question is not the personal cost of caregiving; it's the value that you bring to the lives of others that matter at the end. What personal cost are you willing to pay for the privilege of helping those who welcomed you into the world to enjoy their golden years and travel the road of illness with love and dignity?


Joanne convinced her fiercely independent mother that living alone was no longer an option. And Joanne, the eldest of four children, knew that caring for her sick mother fell on her shoulders. Joanne was a legend in the circles of her family, friends and colleagues for her ability to act with grace under pressure.

Joanne took two weeks of vacation from her job and cooked and froze meals for her husband and three children. As she flew to her hometown, she wondered how she would coordinate her mother's care from a distance. Supporting her husband as he built his new business, nurturing her kids and directing a major project at work already made her feel that she was running on empty.

You may relate to Joanne's story. One out of four Americans cares for a friend or relative who is sick, disabled or frail. That's 46 million Americans who offer unpaid help to a loved one. If they were paid caregivers' compensation would exceed last year's Medicare budget! And if you become a caregiver, you, like Joanne, may try to do it alone, shrouded in secrecy.

Solo caregiving compromises your ability to nurture yourself and others. Let's take caregiving out from behind closed doors. For your sake and the sake of those who count on you, please get some help. Caregivers are competent people who feel that they should be able to do this job. Yet, many soon find themselves unprepared and ill-equipped to manage the sometimes daunting tasks, such as managing a complex medical regimen or remodeling a house so it's wheel-chair accessible or even finding someone to stay with their loved ones so they can go out to a movie without worrying their relatives will fall on the way to the fridge.

If you are a caregiver, you know that this act of love has its costs. You stand to forfeit up to $650,000 in lost wages, pension and social security. Add to that is the personal cost to your well being, as your new demands leave you less time for your family and friends. You may give up vacations, hobbies and social activities. Finally, caregiving places a burden on your health. Caregivers are at increased risk for depression, anxiety, depressed immune function and even hospitalization.

Instead of reaching out, caregivers become isolated. Many who assume the caregiving burden fit the profile of the giving family member, like Joanne, who does not want to trouble others with their problems. Some fear the consequences of disclosing their new demands to coworkers or employers. Caregivers are further challenged by the cultural conspiracy of silence. Our youth-centered society turns a blind eye to the unpleasant and inevitable reality that all of us age and die. This leaves both caregivers and care recipients unprepared. Look no further than the path of Hurricane Katrina to witness the consequences of a lack of planning.

What can you do? Start talking about the "what ifs" and make a plan.

1. Start with yourself. What will happen to you and your family if you become disabled or die unexpectedly? Do you have disability insurance? Do you have a will? Do you have a living will, and have you identified the person who will make the medical choices you would make if you are not in the position to do so?

2. Approach healthy family members. Say, "I hope that you live many happy years in which you enjoy all of the pleasures you worked so hard to create." Have you thought about what would happen to you in the event that you cannot live independently any more? If some medical event befalls you, who would make your medical choices?

3. Look into community resources that support caregiving. A day program, for example, helps your loved one by providing social connections with peers. Your community may even offer transportation to and from the program. Getting out of the house offers the additional benefit of getting bodies moving. Socializing and exercise are the two most powerful interventions that help your loved ones stay at their best.

4. Make specific suggestions to friends, family members and neighbors who want to help. You may even want to keep a "help list." When they say, "Let me know what I can do," you have a response: "Could you take Mom to her physical therapy appointment this week?" "When you're at the store, could you pick up some oranges and blueberries?" "Could you watch the kids for an hour so I can get to the gym?" Your giving friends will appreciate specific ideas about how they can help.

5. Take care of your health. Get good nutrition, plenty of sleep, and regular exercise to stay in top health. Wash your hands regularly to prevent colds and flu. Manage your stress with laughter, a prayer or even a deep breath. Nourish your soul with a taste of activities that recharge your batteries such as writing in your journal or gardening. Finally, talk to your doctor if you feel depressed or anxious.

The best strategies for effective caregiving include preparation, acts of self-care and reaching out for help. That begins with the courage to start talking openly about caregiving.
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Both Vicki Rackner & Vicki Rackner Md are contributors for EditorialToday. The above articles have been edited for relevancy and timeliness. All write-ups, reviews, tips and guides published by EditorialToday.com and its partners or affiliates are for informational purposes only. They should not be used for any legal or any other type of advice. We do not endorse any author, contributor, writer or article posted by our team.

Vicki Rackner has sinced written about articles on various topics from Family, Elder Care. Dr. Vicki is a board-certified surgeon and Clinical Instructor at the University of Washington School of Medicine who left the operating room to help caregivers and patients take the most direct path from illness to optimal health. Want more tips ab. Vicki Rackner's top article generates over 2400 views. Bookmark Vicki Rackner to your Favourites.

Vicki Rackner Md has sinced written about articles on various topics from Family. Vicki Rackner, MD is a board certified surgeon who left the operating room to help caregivers and patients partner with their doctors. She's the author of "The Biggest Skeleton In Your Doctor's Office", "The Personal Health Journal", and "Chicken Soup for. Vicki Rackner Md's top article generates over 2400 views. Bookmark Vicki Rackner Md to your Favourites.
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